When the pharmacy refuses to refill my insulin even though I’m out and it is literally a matter of life or death
Someday I might relate the story of that one time all my insulin froze…
Great Moments in Diabetes History…
I’m on a quest to find the diabetes fandom
what does this fandom ship?
Insulin with a pancreas
That’s a doomed ship. But I agree, insulin/pancreas is my OTP.
That may be true, but myself/quality insurance is a pretty close second.
I would brush my teeth only to check my blood sugar and have it be 85.
I wish my pancreas would be like Doctor Who because then it would regenerate itself and I wouldn’t have to keep giving myself insulin injections.
Often, however, complications aren’t given the grace of being discussed, as we’re taught that they happen because “we did” or “we didn’t do” something. Diabetes is unusual in that way: the fault lies with the patient, not the disease.
“But complications are the direct result of uncontrolled blood sugars,” says the medical community. I don’t disagree. The DCCT trial showed that the best prevention against complications was, and still is, tight blood glucose control. But that is no guarantee. I don’t say that to absolve myself of responsibility, but to move forward in an emotionally healthy way in order to achieve the best physical health possible.
And therein lies the rub. How are we supposed to have the perseverance to screen for complications when we’re afraid to find out the results, because we are then blamed for them? We see people with diabetes climbing mountains and running marathons, but we also see people who are so physically compromised by this disease that we are afraid to associate with them, for fear of acknowledging the parts of our possible futures that keep us up at night. The faces of diabetes range from “I’m more than fine!” to “I’m dying,” and you can feel like you’re on either end of that spectrum on any given day.
Complications happen, and discussions about them shouldn’t be relegated to whispered fears in the bedroom after the lights are turned out. The language around complications needs to change from one of fault and guilt to that of perseverance and renewed hope. We, as a patient community, have the right to disclose our diabetes complications without being blanketed – and suffocated - by judgment. If a complication becomes part of our personal healthcare spectrum, we need to feel empowered to face this new health issue with confidence that there is life after this diagnosis, too. We should be met, by health care professionals and fellow patients alike, with the support and encouragement we need to not lose the reins on good health habits, and to be inspired to make new ones part of our regimen.